NHS Digital Data Extract and Data Choices

Your Data Matters to the NHS

Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.

How your data is used

Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital.  It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.

Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.

You have a choice

You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.

Will choosing this opt-out affect your care and treatment?

No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.

What do you need to do?

If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.

To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters

NHS Digital General Practice Data for Planning and Research

NHS Digital will now be commencing daily collection of GP Data from 1st September 2021. 

Please click on this link for more information: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research

NHS Digital have provided advice for patients to explain how and why your data is being used, and what to do if you don't want your data to be shared.  Please click on this link: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/advice-for-the-public.

In order to assist in making your decision please see the flow chart below on the National Opt Out and Type 1 Opt Out.

National Opt Out and Type 1 Opt Out Flow Chart

To Register for the National Opt Out, please click on this link and follow the instructions on the page: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/

IIf you do not wish your data to be sent to NHS Digital you need to Register a Type 1 Opt Out, please complete the Preference Form (link below) and send to the Practice as soon as possible.

Type 1 Opt Out Preference Form

Download a copy of the patient leaflet



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